Tuesday, May 15, 2012

Tuesday's Truffle is...Gardening!

The Benefits of Having a No-Till Garden

The concept of a no-till garden is not new, but is still not widely known or practiced. It was introduced in the fifties by Ruth Stout, a lady well into her years, who wanted nothing more than to be able to maintain her own garden. For people who like to garden and even those who don't, a no-till garden is the best and easiest way to provide nutrient-dense food for yourself and your family. In today's world, where virtually all agricultural soils have been stripped of all things vital to health and longevity, it has become especially important to learn to work sustainably with nature. It is so easy. Can it be true? Does a tree thrive in the forest? Why, yes, it does.

A no-till garden is achieved by mulching. That is it. This ONE thing, alone, will not only build your garden's soil, but it will do it with very little effort on your end. In the fall, when my garden is done, I rake the yard and put all the leaves in my 600 sq. ft. garden. For five or so years I have done this and to date my garden soil has become something to admire and envy. The soil is light and fluffy, never compact. It is teeming with the all-important microbial life that is essential for living soil and healthy plants. There is no tilling because the worms do it for me. There is less watering because the ground is plump with organic matter, which acts like a sponge, holding water and releasing it when needed. There is no need to add fertilizers since I am essentially composting in place. Perhaps best of all, there is no weeding. Hooray! Throw on some mulch and become a ecological gardener! It's so easy!
 
Anything that breaks down to feed the soil can be used. Leaves and grass clippings are normally free. Straw and hay may cost a bit. However, in my opinion they are still worth it. If one can come across rotted hay, consider it a goldmine! Know the history of whatever you choose to use, of course, making sure it is free of harmful chemical toxins. It takes time to create fantastic soil, but it is so worth it for the eco-conscious gardener. And shouldn't we all be? That said, you don't have to wait to plant a garden. To speed up the process a bit, you can till the first year or two, working the organic matter into the soil. Remember, though, that tilling eventually leads to depleted soil and destroys the soil structure, killing healthy organisms. It's just not natural. The goal is healthy soil and there will be no need to till once the mulching is started and maintained.

Don't wait to start your no-till garden. The old paradigm of gardening is falling away to an idea whose time has come! It is the answer for those who are too busy, lazy, or frail, or for those who desire only the healthiest food for themselves and their family. For many, it is the beginning of a beautiful relationship with nature, functioning in harmony. Put away your tiller, your spade, your hoe. Get ready to partner with nature to create a sustainable space that you will call your garden.
Grow in Peace
Kristen
    
Kristen Earl is a homeschooling mom of 2 boys.  She is building a sustainable farm for her family and the Earth on her little plot of land in Southwest Missouri.  She also runs a cloth diaper business from her home.  She hopes to soon have a web page so people can purchase reuseable cloth diapers online.  You can email her at bepeacefulnow@yahoo.com

*Nature photo by Victoria Dye.  For more fantastic photos by Victoria, see our April 12 and May 3 Truffles.

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May is Brain Cancer Awareness month!  Please visit our link,

At our sponsor site: GBM4cure

Thank you for visiting!  We'd love to start this mini-mag up again someday, and comments and submissions are always welcome.  Our contributors write for us at no charge.  If you like them, please pay them a visit!  If you have questions or a submission, email gbm4cure@gmail.com.


Thursday, May 10, 2012

Thursday's Truffle is...Short Fiction!


Today's "truffle" is actually about 37 pages long.  Due to the length, only the first three pages are shared here, with a link to follow at the end for those itching to read the rest of the story.  (It's a free download on Kindle and Nook.)  The protagonist is Art Hardin, a tough middle-aged gumshoe chosen one of the "Top 100 Private Eyes" by Mystery Scene magazine in January 2007.  The contributor, Robert E. Bailey, is an award-winning novelist who was diagnosed with glioblastoma in August 2011.  Read more about Bob following this excerpt.

Edit:  Sad to say, none of the online outlets would permit the publisher to offer this for free, as was the original intent.  So it's available for less than a dollar... .99 cents.  Sorry!  Hopefully this can be rectified in the near future.


The Small Matter of Ten Large


            I have my own string theory: With age the strings that bind memories together fall slack and faces and places pay a toll to the passage of time.  My son Ben and I hit Greektown, in Detroit, for a coney dog.  We found the place largely bulldozed, with a casino dropped onto the rubble—black jack and slot machines, but not one coney dog in a place that should have had a bronze statue of tube steak on a bun, with chili. 
            A walk around the neighborhood revealed that a street or two of the turn-of-the-century, four-story, brick tenements remained.   Store fronts that had been small groceries, hardware stores, and lunch counters had surrendered to the onslaught of theme bars and snooty restaurants.   Detroit Police Headquarters still stood on Beaubien, but the grey facade now crumbled, and the entrance seemed too narrow and the stone stairs too few.
Even when my son asked—whatever he read from my face--I didn't tell him.  I don't have a good excuse.  He's a damn fine detective and older now than I was when this little porch seemed a much grander stage.  Some things you just don't tell the people you care about.  
It'd be a dumb-shit thing to do today, but back then—on what I remembered as a wider porch with more steps--ten grand would get you two new Chevys, a new Caddy, or a drop-top Deuce and a Quarter with change for a trip to Florida.   Knowing that, I still have to wonder, y'know? What if you knew where you were going to get it and you just didn't go there?  Then what?
Like the day Ian Campbell got his.  That day, the subject of my morning surveillance job got up to acting a little hinky, so I let him go at a traffic light and hit the Lafayette Coney Island for an early lunch—couple of coney dogs and a big plate of fries. That was my plan.   Mickey dah Cousin was already there and he had run into his bookie. Definitely not his plan.
                                                            #
            I walk in and Mickey is sitting on a stool at the counter next to Vinney Slick—Vincent
Maurice Schlichenmeyer--sideways, like he just stopped by and he ain't staying.  Vinney's eating apple pie, little bites.   Tarzan--Fredric Masono, Vinney's muscle--is standing behind Mickey, wearing a pink floral shirt with two yards of collar and cuff squirting out of a coral polyester leisure suit.   Tarzan--who got his nickname because he was big enough to maim an elephant with a stick--wore his black Italian hair permed into a bulbous afro, and his face relaxed into a bored smirk--a vulture waiting for his lunch to exhale, one last time.  
Vinney says, "You owe me ten large last week.  You fuck!"  He takes another bite and shakes his fork at Mickey.  "This week, you owe me eleven."
            Mickey shrugs, shows Vinney his empty palms, and makes that big lap-dog Irish face.  "I was out of town last week," he says.
            "The phone was working when you laid the bet," says Vinney.   "Ten large?   You fuck!"  He takes the fork in his fist and stabs the pie like he's trying to pin it to the counter.  The plate shatters on the floor behind the counter and apple pie is everywhere.  Now he's shaking the fork at Mickey and it's all bent to shit.  He says, "You think I'm a fish?  You trying to gut me like a fish?"
            "I--I had a tip."
            "You thought the fix was in?"  
Alex, the owner, is wiping up and gives Vinney a fresh piece of pie—cherry--and apologizes he's out of apple.
            Mickey's lips are moving but no words are coming out, and when he can't think of any, he's staring at his hands, which he's rubbing together, and squeaks out, "Well, yeah."
            "The fix is in and you're gonna fuck me?"
            "Well, you're gonna lay it off, right?" said Mickey.
            "Yeah, I laid it off.  Such a dumb-shit bet--it only cost a grand.  And let me tell you something, you mick maggot..." Vinney looks at the cherry pie and says to Alex, "The fuck is this?"   Alex apologizes again but Vinney isn't listening because he's shaking the bent fork at Mickey again and saying, "It wasn't such a dumb-shit bet I wouldn't have taken the action.  But I took the action and I paid, last week.  I paid because I'm a stand-up guy.   Unlike you, you fuck!"
            Mickey's looking like a puppy worked over with the sports section and says, "It wasn't a chump bet.  The Pistons won."
            "They didn't make the spread," says Vinney.  "So for you, it's the same as they didn't win."
            "Three days," says Mickey.  "Three days, I make it good.  All eleven."
            "You ain't got three seconds," says Vinney.
            Right there events take an ugly turn at the Lafayette Coney Island and I'm wondering that thing about knowing where you were going to get it and being smart enough not to go there.   Ten minutes later I'm in Detroit Police Headquarters and thinking the same thing, but not mentioning it to Cal because he's not looking like he wants to discuss philosophy.


*Click here for the rest of the story!


Novelist Robert E. Bailey is the 1998 recipient of the Josiah W. Bancroft award for his first novel, Private Heat, featuring PI Art Hardin.  The novel went on to become a finalist for the PWA Best First Novel at the 2003 Shamus Awards.  Bob went on to pen Dying Embers, a finalist for the Great Lakes Book Award, and Dead Bang, nominated for a Library of Virginia award.  Glioblastoma temporarily stole his ability to read and write, but Bob has battled back enough ground to resume work on his fourth novel, Deja Noir, and his first screenplay, For Love and Money.  You can find all of the Art Hardin mysteries here.  Visit Bob on the web at robertebaileyauthor.com, or look him up on Facebook.


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May is Brain Cancer Awareness month!  Please visit our link,

At our sponsor site: GBM4cure

Thank you for visiting!  We'd love to start this mini-mag up again someday, and comments and submissions are always welcome.  Our contributors write for us at no charge.  If you like them, please pay them a visit!  If you have questions or a submission, email gbm4cure@gmail.com.

Tuesday, May 8, 2012

Tuesday's Truffle is...Humor!


34 years ago a family of six went on a vacation. Little did they know that this vacation would be the one that created the legend of…




Dad's Tighty-Whities


George "Bill" McNamee was always an outdoor adventurer, starting out at a young age enjoying camping, fishing, and hiking. While in the Boy Scouts, Bill honed his outdoor adventure skills, becoming proficient in dealing with just about anything or any situation presented to him in the wild. These skills would prove valuable in his later life as a husband and father. 

Bill married Mary Jane McCann, a lovely woman and very devoted wife. For all of Mary Jane’s wonderful qualities, she was not quite, shall we say, the outdoorsy type. Never fear: she had Bill as her faithful companion and instructor in all that is wild and rugged. 

(Okay, I put a little too much on that.) Anyhow, he did what he could to get her in the game. Bill and Mary Jane were blessed with four wonderful children: me, Mike, the oldest (and by far the best looking and smartest), Debbie, Patrick, and Sue. (Yeah, they were kinda okay-looking and somewhat smart, as well.)
 
Back to the story.  When we children were old enough to teethe, we were old enough to camp.  Every opportunity Bill and Mary Jane got to go camping, they did. Bill one day got a proverbial wild hair up his keister and presented Mary Jane with an idea for camping trips of mammoth proportions. They would save their money, Bill would save his vacation time and the family would take one trip every two years and be gone for 4 weeks! 

Had Bill lost his mind?  (Well, of course he had.   Come on now, four kids under the age of 18 traveling together for a whole month?)  

Once Bill was released from the psychiatric ward, he and Mary Jane began planning a trip. The first trip was to visit some friends in Idaho and Washington State, seeing sights like the Rocky Mountains, Mount Rushmore, and Yellowstone National Park. To make the trip as comfortable as possible, Bill bought a pickup truck.  That way, he could stow his little monsters in the back--you know, bounce them around for several hours at a time. (No bitterness here.)
 
The trip was wonderful, memories abound, sore asses and all. Because the trip was such a success, the next trip (in two years) was to be even more over the top: a trip into the uncharted regions of Canada. 

(Okay, they were charted.  I thought it sounded cool.  Sue me.)
 
This trip started in the camping grounds in the upper elevations of the Banff National Forest Mountains, an area traversed by deer, elk, mountain lions, and bear.  When we entered the camping grounds, a friendly Canuck offered some advice:  "If you store any food, please do so by hanging it high in a tree or in a solid steel container, like inside your car."

Well, the McNamee family had upgraded to a nice large van for this trip, thank God, but the Army footlocker the food was stored in was not small enough to remain in the van while the family slept at night. That was okay; Bill had an idea that would accommodate everyone and the food. 

Ah, at last we settled down to a fun-filled afternoon of hiking, exploring, and just plain goofing around. As the evening approached, Mary Jane began dinner preparations, pulling pots from one place, pans from another, and food from the WOODEN Army footlocker. As always, the dinner was phenomenal.  Making the meal extra special was the ambiance of the great outdoors. 

After the meal was complete, while we were doing the dishes, three men pulled up in a car to set up camp in the spot next to ours. By eavesdropping on their conversation and by their unique appearance, we all surmised that these three gentlemen were from Japan or some other Oriental country.  Bill, being the friendly sort that he was, approached the men and proceeded to offer his children to them as slaves if they so needed. (Oops, I mean he offered our assistance.) The brief conversation went without a confirmed ending, as the two parties did not speak each other’s language.

Later that evening, the McNamees sat down to an evening snack: Jiffy Pop.  (For those of you not in the know, this is popcorn that is packaged in a self-enclosed popping pan.  If you don’t know, you can Google it.)  Anyway, while we were popping the popcorn, one of the Japanese men approached our campsite to continue the greeting formalities. This process would have only taken a minute if not for the popcorn beginning to pop in this odd contraption. 

"Ching chow!" the man exclaimed.  (I made those words up, I don’t know what the hell he said.)  In utter amazement he stared at the foil rising and smelled the aroma of buttered popcorn.  Being the good hostess, Mary Jane opened the bag and offered him a handful. Well, let me be the one to tell ya, he loved it, so much so he felt compelled to invite his two other campmates. Together everyone snacked away on popcorn and shared stories of past adventures…Whoa, wait a minute, they may have shared their story and we may have shared ours, but we had no clue what they were saying and they had no idea what we were saying.  All the same, big fun was had by all.

As the evening wore on, the friendly Japanese fellas went back to their camp and we readied ours for the night. Bill had come up with the plan for the Army footlocker that stored our food. Because it was too big to put in the van and still have room to sleep, and it was too heavy to hoist into a tree, Bill decided it was best to wedge it under the van. So he pushed and shoved and heaved and ho'd until finally there was no way it was coming out. It was in there so good most likely it would take a tire jack to get it out.

Well, now we could rest in peace that the family and our food was safe and sound. So, like a neatly packed can of sardines, we all settled in for our evening slumber. 

At around o-dark thirty in the morning, the oldest and best-looking child (Mike) awoke to the sound of scratching. As he looked up to investigate, he noticed the youngest child, Sue, moving about.  

"Hey Sue," Mike said, "quit scratching the van."
 
Before I go on, please allow me to elaborate on young sister Sue. Sue began camping at a very young age, maybe too young, although she was probably the toughest of all when it came to camping. Let me tell you, she could sleep anywhere, any time.  One time Mary Jane thought she had wandered off in the middle of the night. She didn’t.  Nope, she just slid out of the pop-up camper we were in, just dangling there with half her body outside the camper.  Didn’t bother her a bit. So when something odd was happening on our trips and Sue was anywhere near the weirdness, it was taken with a grain of salt.  This time, though, it was annoying; she was waking everyone up.  Bill sat up and said, "Stop that, Sue!"
 
Mary Jane gave her one of her famous lines: “Quit it, Sue, or I’ll crack ya!”  (It’s a funny thing mom does.  She acts like she is going to slap the top of your head, but instead smacks her own behind--for the sound effect--and never actually touches you.  Only the McNamee clan would understand that one. Oh, yeah, that and her favorite word, “blida.”  Who in the world comes up with words like that?  "Blida" is not supposed to be a made up word according to her; it's Polish for something with four letters.  But we never looked it up.) 

Anyway, Bill realized that the noise was not Sue; he climbed over top of many family members trying to take a look outside. 

All at once he exclaimed, "Holy shit, it’s a bear!"
 
All-righty then, this changed everything.  Did the old man just say BEAR?
 
Bill quickly turned to the highly intelligent oldest son, Mike, and said, "Grab the keys to the van, start it up, honk the horn and flash the lights.  We have to get this thing out of here!"
 
So Mike did just that.  All the while Bill was scratching his chin, trying to figure out how to get the footlocker into the van. The bear was pawing and clawing at it with really no regard to the noise going on. 

With a loud crack, the bear removed half of the front of the locker, taking a lock and two hasps with it. The bear then nosed into the food and pulled out a nice fresh loaf of bread.
"Fine, enjoy the bread!" Bill said.  "Now just move on away!"
 
As the bear backed off, I saw what I still claim as the most heroic, but also embarrassing, moment I have ever seen. My dad, Mr. George William McNamee, leaped out of the van, in nothing but his Fruit of the Loom tighty-whities, grabbed the footlocker with the strength of ten men, and, quick as you can imagine, threw it into the van. All the while a 500-plus pound bear, with a loaf of bread in its mouth, stared on in amazement. 

Maybe the bear was laughing so hard at the sight of a man in nothing but his under-britches doing what he was doing, that it just couldn’t bring itself to do anything else but watch.
Now that everyone was safe and sound in the van, we all watched as the bear turned away—only now we saw the two bear cubs she had brought along with her.  They ambled from campsite to campsite, scaring the bejesus out of everyone else there. It wasn’t until the bears approached the friendly Japanese chaps, though, that a bit of concern came over us. Because of the racket we had made, one of the gentlemen had left his tent to investigate.  All at once the bears came around the corner and he stood face to face with a very hungry family of bears. 

I will tell you now, when that little fella saw those bears he went from standing on the ground to the top of his car so fast he didn’t even bend his knees to jump. He began ranting and raving to his friends, who were still in the tent, something in Japanese.  You know, "Ching chow chang," only panicky-like. Well, in all the commotion, I can’t say what all happened.  I do know that Mother Bear did go into their tent and tear it to pieces. Then the bears made their way down the road to terrorize the rest of the camp. 

The next morning the campground was abuzz about the whole incident, some folks laughing about dad in his underwear, others crying because of dad in his underwear. The experience was one of many we shared on those long trips. 

                                                                 ***

I have to say, my mother and father really knew what was best for their children. Looking back, we may have taken this for granted, but I most certainly would have not have survived this long without the life skills they provided.

Thanks, Mom and Dad.  We love you.


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The author is in the middle of the Himalayas, on a year long adventure that includes his third expedition to the top of Mount Everest. This time he will be going alone and traversing the North Face. He introduced the Dali Lama to cheeseburgers and fries and a business partnership is in the works to open Dahliland theme park in Tibet. 


...Had ya going, didn't he?  Highly intelligent oldest son Mike, the author of this piece, is originally from St. Louis, Mo.  He is the father of two grown boys, and has one grand-daughter.  He currently lives in California soaking up the great weather and letting us know just how much nicer it is out there than in the Midwest! 
 
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May is Brain Cancer Awareness month!  Please visit our link,

At our sponsor site: GBM4cure

Thank you for visiting!  We'd love to start this mini-mag up again someday, and comments and submissions are always welcome.  Our contributors write for us at no charge.  If you like them, please pay them a visit!  If you have questions or a submission, email gbm4cure@gmail.com.


Thursday, May 3, 2012

Thursday's Truffle is...A Photo Gallery!

Veterinarian Victoria Dye maintains a busy career doing relief work at small animal practices throughout central Virginia, but she never forgot her childhood love of photography.  Taking advantage of her travels to exotic locations during her senior year of vet school, she purchased a new camera and started to take pictures again.  Bitten by the photography bug, she took seminars in nature photography as the years went by, with impressive and beautiful results.  We'd like to thank Victoria for sharing some of her work with us here at The Chocolate Box.  You can see more photos and read more about her at www.victoriadye.com .  Victoria also teaches photography; you can find out about her classes here.

If you like Victoria's work but missed her last photo spread here at The Chocolate Box, go back and look at Thursday's Truffle for April 12, 2012.













































































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May is Brain Cancer Awareness month!  Please visit our link,

At our sponsor site: GBM4cure

Thank you for visiting!  We'd love to start this mini-mag up again someday, and comments and submissions are always welcome.  Our contributors write for us at no charge.  If you like them, please pay them a visit!  If you have questions or a submission, email gbm4cure@gmail.com.






Tuesday, May 1, 2012

Tuesday's Truffle is...News You Can Use!


“Excuse me ma’am, but where is your water shut off valve?”

    Donna McCart joins us again with some sage advice for the family caregiver.

Never would anyone refer to me as a ‘damsel in distress’; however, when my husband was suddenly hospitalized for a brain tumor, in addition to navigating the cancer treatment maze for the newly diagnosed, I also had to deal with bathroom renovations that were in progress at our home.  Two weeks into a complete master bathroom renovation the plumber walked into my kitchen and asked me where the shut off valve for the house’s water was located.  I looked over at my sleeping aphasic husband knowing he would not be able to answer the question, since he could barely remember our address, and thought, “Boy, am I in trouble here.” 

I'm sure all of you prepare for the 'just in case' and all of you update your wills every ten years or when things change, as we're supposed to do (cough, cough). Given that, I thought I'd share some of the 'never really thought of' things that I've learned in the past few months that may make your preparation more complete in case of a sudden life change. Now, mind you, this is from my perspective, and I knew some, but not all, of these things.  

Make sure at least two trusted people know where your 'important' information can be located if needed in addition to your significant other and/or adult children.


What is the important information???

Keep (in a safe place) a journal, loose leaf binder, or notepad that contains all of your online information, email accounts, a monthly bills list, your banking establishment and account numbers, Amazon, any monthly orders you have delivered, and any accounts you handle online, along with any sign-ons, passwords, and answers to security questions. 

Keep your security questions factual or make up joint answers. Guessing who was your husband's/wife's childhood best friend, or their favorite pet growing up, or their favorite book or movie of all time may be more difficult than knowing the street they were raised on, the hospital they were born in, or their mother's maiden name.

Make sure your notebook outlines where wills, health directives, key legal papers, power of attorney, passports, birth certificates, social security cards, stock certificates, any titles or deeds, and all the important papers are kept.  Better yet, keep them together in a fireproof safe or locked box and tell your trusted people where that is located. 

Keep one list of service providers or accounts you have including your mortgage, 401k, banks, pensions, IRAs, cable, gas, electric, water, sewer, phone, internet provider, mail order pharmacy, doctor, lawn company, plumber, vet, septic service, general contractor, heating and AC, any special services you order such as snow plowing in the winter, unused lines of credit, credit cards (individual and joint), vehicles, insurance (all types) and where you get your oil changed or car serviced. I thought I knew them all...I did not.  You want to avoid a surprise when you call the cable company to report a problem and they laugh because you have no idea what your account number is, or you have to wait for the next bill to know which of three local electric companies you use.

Keep a full medical history with illnesses, surgeries, etc. in the notebook. 

Keep a short list of key phone numbers with your important papers. In this day and age of cell phones, the art of remembering a phone number is diminishing.

Give at least two trusted individuals keys to all important items and/or keys to your house, and explain to them where they can locate other important keys or items (duplicate car key, sheds, location of lock box, bank safety box, etc).

If you use combination locks anywhere (we use one on the shed at our Pocono house), make sure the combination is written down.

If you do not already know, then find out where the breaker box, fire extinguisher, the gas shut-off, and the water shut-off for your house(s) are located. 

If you have seasonal activities, such as opening a pool, write down or learn the steps, the location of switches, and where the supplies and tools are. (I knew everything but where the actual switch was to turn on the gas heater, which was located in a small box about 10 feet from the unit against a fence.  We looked for an hour and missed it every time until my husband finally remembered.)

Have your own basic tools: hammer, duct tape, screwdrivers, flashlights, channel lock wrench, drill bits, tape measure, etc., or at least learn where they are most likely to be located.

Learn the brands of anything your significant other typically takes care of and where to get them, such as pet/animal food, fire wood or any product that you typically do not buy yourself.

You can purchase specialty binders that will help organize things, although I personally use steno books myself.

I always thought we were very organized and I knew where most of these items were, but it's the one you hadn't thought of that causes you stress when you don't need more stress. I urge you to take time to think it out, talk to each other, note things you do not handle and get them written down.

Thanks, Donna.

Donna McCart is the loving wife of Raymond, who was diagnosed with GBM in April 2011.  Donna and Ray have one daughter, Lauren, in her early 20s, and share their life with Yoshi, an Akita, and Ace, a chocolate lab, in the suburbs of Philadelphia. 

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May is Brain Cancer Awareness month!  Please visit our link,

At our sponsor site: GBM4cure

Thank you for visiting!  We'd love to start this mini-mag up again someday, and comments and submissions are always welcome.  Our contributors write for us at no charge.  If you like them, please pay them a visit!  If you have questions or a submission, email gbm4cure@gmail.com.

 


Thursday, April 26, 2012

Thursday's Truffle is...Stories of Hope and Inspiration!


Many people know a bit about pancreatic cancer since the actor Patrick Swayze died from it in 2009 at the age of 57.  Many know that it is an extremely aggressive cancer and that its survival statistics are dismal.  However, there is one other cancer this virulent that many people don't know about...a brain cancer called glioblastoma multiforme, often shortened to "GBM".

The median survival time for a newly diagnosed GBM patient is about a year.  Yet, there are those patients who have defied the odds to survive over ten years.  One of these remarkable people is Tom Sadowski.  For the approaching month of May--Brain Cancer Awareness month--Donna McCart contacted Tom for an interview, so we could share with you his inspirational story.  Here Tom tells you a little about himself, and then answers some questions from Donna.


About me


Tom Sadowski, 59.  I was diagnosed in 1999 at 47 years young.  I had the good fortune to have a primary care doc who acted quickly based on my symptoms that did not obviously suggest brain tumor. They were all visual like missing words when reading, bumping into things on my left side, etc.

The symptoms occurred on a spring break trip with my family.  I called my doc at home on Sunday when I returned.  He scheduled a scan for Wednesday, I saw the neurologist and neurosurgeon Thursday and had surgery the following Tuesday.  My tumor was in the upper right parietal lobe.

It still amuses me that I was diagnosed April 1.  I still don’t know who fooled who.

My first surgery was at Ellis Fischel Cancer Center in Columbia, MO (Ted Colapinto was the neurosurgeon and Clay Anderson was the oncologist).  Dr. Colapinto said the tumor was still encapsulated and he was able to get it all.

After surgery, I was first treated off-trial, with stereotactic radiation and chemo (BCNU, which I don’t think is used anymore).  I also had a six week regimen of radiation.  Since I couldn’t drive and my wife was working I often asked others to drive me. Sometimes these were people I knew but not that well, such as the son of a good friend and the provost where I worked, the University of Missouri.  We had good chats.  I also become friends with the techs.  The steroids did help with my energy through all of this.

On my recurrence (same location as before) in 2001, I was treated at University Hospital in Columbia (John Oro was the neurosurgeon).  As part of the surgery, Gliadel wafers were implanted. 

In 2002 there was a suspected recurrence and for this I went out of network to University of California, San Francisco (UCSF).  Their tumor board agreed another surgery was warranted.  Dr. Mitch Berger did the surgery and, needless to say, I am a huge fan.  Dr. Michael Prados was the oncologist.  The good news was it was only scar tissue and radiation necrosis.

I live in Jefferson City, MO.  I am retired from a career in auditing, accounting and administration, having served as a Director of State Audits for the Missouri State Auditor and as a Director of Accounting for both the University of Missouri and the State of Missouri.

I am now engaged in some volunteer activities, among other things serving as treasurer of our Boys and Girls Club. 

My most treasured time, though, is communicating with GBM survivors and caregivers.  I am listed as a resource with several organizations and people know I am willing to talk to others about this.  It is how I “pay it forward” for the blessings I have received as a long-term survivor.

I am married to Jatha and together we have three children – Grant, Cale and Kaitlyn.  We had a terrier-Chihuahua mix that lived to 17 years.  King truly was a part of our family (the only one in our family picture who was good on every take) and I don’t see us replacing him.  While I was home for a month after the first surgery I would often lay with him in front of the stereo listening to music.  He would also be with me for naps.

Regarding the kids, we told them what was going on from the start and they handled it pretty well.  I think it was because we were open and honest with them, neither overly optimistic nor pessimistic. Now, years later, what they told us is they watched how we were dealing with it.  Kids can just tell when you aren’t being straight with them.  They take their cues from you.

Donna:  Were you part of any clinical trials, or were you told about any at all?

Tom:  I did one treatment as off trial. Yes, I was told about trials but there was never a need to pursue one.

Donna:  What part about all this was the toughest?  What were the biggest challenges you faced in the early days post diagnosis? Did you ever feel like you “hit bottom emotionally”?  What got you through it?  How do you get the support you need?

Tom:  I really have no memory of anything being tough and I never “hit bottom”.  One of my priests told me I must really be angry and I told him no.  Why should I be angry and at whom?

One of my mantras was “Que sera, sera – what will be, will be.”  No amount of worrying will change the outcome.  Did I think about it?  Sure.  As I like to say, I visited the future but I didn’t stay there.  You need to know what is possible so you will recognize things when they occur and prepare for them.  I always wanted to know what might happen and what the options were so we weren’t caught by surprise.  As my wife often said to the docs, “There is nothing you can tell us that is worse than we can imagine.”

One thing that is tricky is symptoms.  Your first thought is recurrence.  You see everything through the prism of GBM.  Is it back? Going for a scan I rarely worried as much as my wife and it took me a while to realize that.  I feel in many ways GBM is hardest on the family because of the emotional toll.

This prism is the new normal.  You can’t go back.  Will there ever be a day that you don’t think about GBM?  Maybe.  It took a while but one day I realized I didn’t think about it yesterday.  Oh, I still knew, but not front and center.  You adjust and don’t let it be your life.  One day as we were leaving the hospital I told my wife this – I don’t want to live my life thinking I have some finite time left and then later look back with regret when I realize I had more time and wasted it.  You don’t have to change your life or become someone else.  Just be more mindful to do what is right for you.

Regarding symptoms, there are so many causes – medical, emotional, physical, spiritual.  It may be easier to understand what is happening than why and what you can do.

One other observation - the docs don’t have the experience of the patient.  As good as mine were they sometimes didn’t relate or tell me something I needed.  This is why having connections with other survivors can be so helpful – sharing what the path is like.  Giving a heads-up not just on what might happen, but its significance.

Receiving support was an emotional and humbling experience.  Why do these people care about me, even people I barely know.  You may find, as I did, that you are loved and lovable.  Not an easy thing to accept, at least for me

Donna:  Did you have health insurance? Was it adequate to cover your treatments? If not, have you had financial hardship and how have you handled that?

Tom:  Yes, I had health insurance and it covered my treatments, including going out of network.

Donna:  Did you make lifestyle changes after diagnosis (food, exercise, other?)  Do you do any "alternative" treatments along with western meds?

Tom:  I did not make any lifestyle changes after diagnosis, though more recently I got back to eating better and walking regularly.

Donna:  Do you live with deficits from having brain tumors and treatments? Have you learned how to compensate and overcome the deficits you live with?

Tom:  My only deficit is minor loss of peripheral vision.

Donna:  What gave you hope that you can beat the statistics?  Was there a moment or point in time (and what were you doing) that you realized you might defy those statistics?  Did you start our pretty much hopeless and then realize things weren’t turning out that way after all, or did you always know you were going to beat your cancer?

Tom:  I don’t know that I ever thought about beating the odds.  I still don’t think that way, even though I have been tumor free since 2001.  I do know how fortunate I have been.

I never felt hopeless and part of that was my faith.  It is easy to have faith until you are tested.  That is when you find out what your faith is made of.

Two things about my daughter, who was not yet eleven.  First, I remember seeing her in our yard and thinking I might never get to walk her down the aisle.  After a while these thoughts went away.  The second was my wife telling me that my daughter said, “My dad’s going to be OK”.  That was a comfort to me. Yes, maybe I’ll be OK.

Two things I did not understand about the statistics were that they are a median –half are above and half below and they are based on five year old data.  A lot can change in five years.

Donna:  What was the most important advice you were given throughout this journey?

Tom:  Nothing sticks out at this point.

Donna:  Any good tips you can give newly diagnosed patients that will help them through the standard treatments—surgery, radiation, and chemo?

Tom:  Start with three words – Comfort.  Healing.  Hope.  Put yourself at peace as much as you can amidst the turmoil.  Take a breath.  OK, take another breath.  You might not be cured but you can be healed.  A brain tumor is something you have, not something you are.  Your biggest challenges are not medical or physical.  Your brain holds who you are.  If you have emotional or spiritual issues, resolving them can make you whole as a person, regardless of the medical side.  Finally, there is always hope.  Certainly there is hope medically, with new treatments, trials and research.  But your biggest hope is living as who you are.

Don’t try this alone.  No matter how smart or strong you are, let others in to help, on all levels.

Put someone in charge of communicating and being a central point of contact.  We used a close friend who would email people to keep them informed.

Decide how open you want to be and how and how much you want to interact with others.  I was very willing to share and I enjoyed people visiting.

Make sure you get enough rest and don’t overdo.

When we met the neurosurgeon the first time, my wife asked a lot of questions.  At least twice he said, “Nobody asked me that before”.  That’s who you want with you, someone who can pick up the nuance and pull out what you need to know that the doctor may not think about.

Even when my wife is emotionally engaged she can think clearly, see what needs to be done, and act.  You want this with you, too, when dealing with a GBM.

Donna:  Tom, Thank you for taking the time to share your experiences and offer insight to others on this journey.  Your ability to keep perspective with the challenges thrown at you shows a real strength of character. I wish you many more years of continued happiness with your family.  

Tom:  Cancer, whether GBM or something else, is a fact of life, but it does not define us.  All of us caring for others helps make the best possible life for each of us.  Thank you for doing this.

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Chocolate Box contributor Donna McCart is the loving wife of Raymond, who was diagnosed with GBM in April 2011 and just recently passed away of his disease. Donna and Ray have one daughter, Lauren, in her early 20s, and share their life with Yoshi, an Akita, and Ace, a chocolate Lab, in the suburbs of Philadelphia. 

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